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"If God leads you to it, He will see you through it," said Jayson Ethin Thomson laying in the ICU at the Mayo Clinic in Minnesota in March of 2010. This has become their family moto because of the courage and faith this young child had facing an unknown condition with an unknown prognosis. Just the month before Ethin was close to an undefeated wrestling season when he felt a pain in his chest and couldn't finish his match. This was the last time he participated in a sport. No more quarterbacking, no more wrestling, and no more baseball. It was believed that Ethin had Hodgkins Disease. This was not the case. That led to a series of tests, procedures, and surgeries. It took a team of 16 doctors 20 months to come to a final diagnosis of Dysautonomia. Once an energetic and active child, Ethin now struggles with excessive fatigue, shortness of breath, brain fog, and many other symptoms every day. The disease has hindered him from being able to attend school regularly, participate in any sports, or do most simple tasks that the average teenager can do. Their is also no cure for Dysautonomia, just treatments for the symptoms. Dysautonomia is called an "invisible" disease because to look at Ethin, one would not believe he has the problems that he suffers with. Many doctors are unfamiliar with the disease and how to treat someone with it. We would like to raise awareness so that this disease does not go unnoticed. We also hope to reach out to others who have Dysautonomia in our community.

 

So, how can YOU help?

ONE CHILD'S STORY...

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